Just got news that a local newspaper wants to do an article on me sometime within the next couple weeks! Makes me so nervous and excited! Pray that we can spread some awareness and start to get some answers into the hows and whys of this disease!
Got wonderful news about treatment the other day! Things are still progressing and we should know more very soon, possibility of treatment in a few months even! Ahhh *fingers crossed* I have been so excited I haven't hardly been able to sleep! HAHA
So excited to say I raised a total of $158.10 with my GiveForward account! With the prices I found when I researched before that should just about cover the cost of our rental car to get to and from the appointments!! :) How awesome is that!!! Hopefully when the Scentsy party is all said and done that will cover our hotel and then the last big thing will be flights! :)
The other day my phone rang and I looked at the caller ID and got super excited thinking it was a call about my eyes! So I excitedly answer it to find instead, it's Target pharmacy calling to remind me a prescription is ready to pick up! HAHA Such a sad let down!
We are kicking off the 24 hour Facebook campaign! Please feel free to update your status, I hope to see a lot of support!
HELP CHRISTIE @ http://www.giveforward.com/myjourneywithkeratoconus
In honor of my Birthday, we are going to be holding a 24 hour Facebook campaign. We are asking as many people as possible to change their status to ‘HELP CHRISTIE @ http://www.giveforward.com/myjourneywithkeratoconus’ If you would like to join in and spread awareness it will take place July 24th at 1 pm to July 25th at 1 pm! Thanks in advance for all your support! :)
IMPORTANT!! I need as many people updating their status message as possible to make this work, so PLEASE invite your friends to join this group (https://www.facebook.com/events/459318324092409/).
My Journey With Keratoconus is now on Facebook!! "Like" us for updates and random facts/info regarding Keratoconus! Use either the blue "F" link on here or go to https://www.facebook.com/MyJourneyWithKeratoconus and hit "Like"!
Sorry I haven't updated in awhile, summer is always super busy for us! We just celebrated our Daughter's Baptism and our Son's 2nd Birthday over the weekend, so I was a busy bee planning that and making the cakes and food! Nothing new to report sadly, still working on raising money to help with travel costs and lost wages. Still have candles for sale if anyone is interested please use the contact me tab, I can ship anywhere :) I think I am going to contact my local Lions club since I never heard back from the lady that contacted me from another area's, maybe they will be able to help! :) Trying to figure out how to talk to our church as well, I am so nervous about it and really don't know how to go about it. If you know me, you know how bad I am about asking for help! :( I have always had to rely on myself and that has made me a little bull headed about asking and taking help! I joined a Mother's Group at the church though and they are super nice, knowledgeable women so maybe they will be able to help me (when I get the courage up to talk to them anyways). I am really praying that I will be able to share some good news in the near future, like maybe a date! :) If you have any other suggestions feel free to leave them for me either here or using the "contact me" tab!
Spoke with a Church today about the possibility of a benefit, please pray it comes through for us! :)
Still waiting to hear more info on a date/treatment and also trying to liquidate what candles I have left. I have sold a lot but still have a fair amount left as well, anyone have any ideas on how to get rid of them!? Will keep everyone posted as soon as I hear something though! :) Hopefully it won't be much longer now!